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Acromegaly

Welcome to this website, which aims to provide clear, easy to access information about acromegaly and its treatment.

What is acromegaly?

Understanding acromegaly

Whether you have just been diagnosed or have been living with acromegaly for some time, you are not alone. Although it is a rare condition, acromegaly still affects hundreds of thousands of people around the world.1* It is a serious health concern, but doctors understand acromegaly well and effective treatments are available.

You don’t need to have a diagnosis of acromegaly to hopefully find this site helpful. Perhaps you feel that you or a loved one may have acromegaly and would like to know more. If so, this is a great place to start. Please remember though, the information on this site is not intended to replace medical advice, so be sure to speak with your doctor too.

*Based on an incidence of 59 people per million1

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What is acromegaly?

Acromegaly is a rare condition caused by too much growth hormone in the body, usually from a non-cancerous tumour in the pituitary gland, at the base of the brain.

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What are the symptoms of acromegaly?

Symptoms of acromegaly vary and may develop slowly, making them hard to detect over time.

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How is acromegaly diagnosed?

Doctors diagnose acromegaly by assessing symptoms and testing to determine how much of a hormone called insulin-like growth factor-1 (IGF- 1) is in the bloodstream.

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How is acromegaly treated?

Treatment aims to lower IGF-1 levels, easing symptoms and improving quality of life.

References

1. Crisafulli S, et al. Eur J Endocrinol 2021;185:251–63.